Got an idea for a holiday? Send it to us

Submit Now

Alport Syndrome Awareness Month – March 2025

We observe Alport Syndrome Awareness Month in March every year to spread the word about a disease that affects the lives of the people we love, both young and old. Creating awareness about this rare genetic disease helps garner desperately needed support to fund research and provide treatments for those suffering from Alport syndrome. Alport syndrome affects one in every 5,000 to 10,000 people on the planet. It is an inherited disease without specific treatment or cure. Medication is usually given at the early stages to treat the symptoms and slow down kidney damage.

History of Alport Syndrome Awareness Month

Alport Syndrome Awareness Month is celebrated during National Kidney Month in March. During this month, the Alport Syndrome Foundation (A.S.F.) partners with other kidney-related organizations to create awareness of Alport syndrome, an extremely rare genetic disease that causes a decline in kidney function over time.

There is currently no specific treatment for Alport syndrome. However, according to the National Kidney Foundation, doctors may prescribe medications to slow the development of kidney disease. Through their efforts, the A.S.F. hopes to increase early and accurate diagnosis of Alport syndrome and emphasize the need for research and funding. Research is ongoing to understand Alport syndrome better and develop more effective treatments and cures.

In 2021, the A.S.F. presented a funding award of $132,000 to the Division of Nephrology at Washington University to support Dr. Jeffrey Miner’s laboratory as it carries out studies that would effectively treat patients with Alport syndrome. In 2019, patients shared black and white photographs of themselves for the Facing Alport Syndrome campaign organized by the A.S.F. They sent the pictures to medical professionals to provide a visual demonstration of how Alport syndrome affects people of all ages, genders, and backgrounds. Patients also shared the A.S.F.’s social media messages to raise awareness of Alport syndrome on social media.

Alport Syndrome Awareness Month timeline

Alport Syndrome is Identified

Dr. Cecil A. Alport first identifies Alport Syndrome in a British family.

The A.S.F. Dream

Sharon Lagas, the co-founder of the A.S.F., dreams about starting the organization after losing her brother to the disease.

The Facing Alport Syndrome Campaign

Patients share black and white photographs of themselves to help medical professionals visualize how Alport syndrome affects different people.

A.S.F. Shares Insights from a Diagnosis Survey

The survey reveals that 51% of adults suffering from Alport Syndrome are misdiagnosed or incompletely diagnosed.

Alport Syndrome Awareness Month FAQs

How serious is Alport syndrome?

Research shows that 90% of males develop kidney failure by the age of 40 without treatment. This percentage is lower in females. Alport syndrome patients also typically experience other serious effects like hearing loss and eye abnormalities.

What is the life expectancy of someone with Alport syndrome?

Women with Alport syndrome tend to have a normal lifespan, even though they still experience negative symptoms. However, without treatment, men with Alport syndrome can experience end-stage renal failure and deafness by 40.

Can Alport syndrome skip a generation?

Women are typically underdiagnosed with Alport syndrome, causing the misconception that the syndrome skips a generation.

How to Observe Alport Syndrome Awareness Month

  1. Create awareness

    Join the A.S.F. and the world by creating awareness about Alport syndrome. In recent years, one of the most powerful ways of spreading messages worldwide is through social media. Share Alport syndrome-related content on your Facebook, Instagram, Twitter, or LinkedIn profile to spread the word.

  2. Attend an Alport syndrome webinar

    Webinars are a great way to learn about new topics and solutions to various life challenges. Attend the A.S.F.’s annual webinar, or feel free to organize one yourself and invite your friends and family. The goal is to educate as many people as possible about Alport syndrome.

  3. Support fundraising campaigns

    There is no better way to show compassion and support to another human being than giving a gift. Every penny you give could end up saving someone’s life. Donations to Alport syndrome campaigns are used to fund sensitization efforts and research to treat Alport syndrome.

5 Important Facts About Alport Syndrome

  1. There is no treatment

    Medications are only given at an early stage to treat the symptoms and slow the development of kidney disease.

  2. It is an inherited disease

    Parents pass Alport syndrome on to their offspring or descendants.

  3. Different genetic types

    There are three types of Alport syndrome: X-linked Alport Syndrome, Autosomal Recessive Alport Syndrome, and Autosomal Dominant Alport Syndrome.

  4. All types affect kidneys

    Alport syndrome damages the tiny blood vessels in the kidneys’ glomeruli, preventing the waste and extra fluid in the body from being filtered.

  5. You lose a piece of your kidney

    It’s helpful to diagnose Alport syndrome through a kidney biopsy — they use a special needle to extract a piece of your kidney to view it under a microscope.

Why Alport Syndrome Awareness Month is Important

  1. We learn more about Alport syndrome

    Alport Syndrome Awareness Month provides the opportunity to educate the world about Alport syndrome, creating the much-needed awareness for early diagnosis that could save someone’s life. People suffering from the disease speak about their life, opening up more discussions on the subject.

  2. Funds are raised for research

    Increased awareness often leads to funds, as the A.S.F. showed in 2021 when they presented a $132,000 funding award to Washington University. The foundation donated the money for research to treat Alport syndrome.

  3. Valuable insights are shared

    Campaigns like Alport Syndrome Awareness Month allow patients and experts to share valuable insights into Alport syndrome. For example, in 2021, the A.S.F. shared insights from their Diagnosis Stories Survey involving 240 patients, revealing that 51% of adult patients were either initially misdiagnosed or incompletely diagnosed.

Alport Syndrome Awareness Month dates

2025March 1Saturday
2026March 1Sunday
2027March 1Monday
2028March 1Wednesday
2029March 1Thursday
Festival of Owls Week
Hearing Awareness Week
Iditarod Race
International Women’s Week
National Aplastic Anemia & MDS Awareness Week
National Ghostwriters Week
National Invest in Veterans Week
National Will Eisner Week
National Write a Letter of Appreciation Week
North Dakota Winter Show
Universal Human Beings Week
Universal Human Beings Week
Asiatic Fleet Memorial Day
Baba Marta
Baby Sleep Day
Earth God's Birthday
Endometriosis Awareness Day
Independence Movement Day
International Ideas Month
International Martisor
International Women of Color Day
National Black Women in Jazz and the Arts Day
National Dadgum That's Good Day
National Fruit Compote Day
National Horse Protection Day
National Hotel Slipper Day
National March First Day
National Minnesota Day
National Peanut Butter Lover's Day
National Pig Day
National Sage Day
National Texas Stress Day
National Wedding Planning Day
National Welsh Corgi Day
Peace Corps Day
Plan a Solo Vacation Day
Public Risk Management Awareness Day
Ramadan Begins
Refired Not Retired Day
Self-Injury Awareness Day
Share a Smile Day
St. David's Day
Tsagaan Sar
World Civil Defense Day
World Compliment Day
World Seagrass Day
Yap Day
Zero Discrimination Day
Academy Awards Month
Adopt a Rescued Guinea Pig Month
Adopt a Rescued Guinea Pig Month
Alport Syndrome Awareness Month
American Red Cross Month
Berries and Cherries Month
Bleeding Disorders Awareness Month
Bleeding Disorders Awareness Month
Brain Injury Awareness Month
Brain Injury Awareness Month
Colic Awareness Month
Color Therapy Month
Colorectal Cancer Education and Awareness Month
Deep Vein Thrombosis (DVT) Awareness Month
Dolphin Awareness Month
Employee Spirit Month
Endometriosis Month
Essential Tremor Awareness Month
Exotic Winter Fruit & Leeks and Green Onions Month
Expanding Girls' Horizons in Science and Engineering Month
Eye Donor Awareness Month
Frozen Food Month
Gardening, Nature and Ecology Books Month
Gender Equality Month
Greek-American Heritage Month
Honor Society Awareness Month
Humorists are Artists Month
International Mirth Month
Irish-American Heritage Month
Listening Awareness Month
Mad for Plaid Month
Malignant Hyperthermia Awareness and Training Month
March Madness
Marie Curie Great Daffodil Appeal
Mental Retardation Awareness Month
Middle Level Education Month
MS Awareness Month
National Athletic Training Month
National Bed Month (U.K.)
National Breast Implant Awareness Month
National Caffeine Awareness Month
National Celery Month
National Cerebral Palsy Awareness Month
National Cerebral Palsy Awareness Month
National Cheerleading Safety Month
National Clean up Your IRS Act Month
National Colorectal Cancer Awareness Month
National Craft Month
National Credit Education Month
National Crochet Month
National Developmental Disabilities Awareness Month
National Developmental Disabilities Awareness Month
National Developmental Disabilities Awareness Month
National Endometriosis Awareness Month
National Ethics Awareness Month
National Flour Month
National Kidney Month
National March Into Literacy Month
National Music in Our Schools Month
National Noodle Month
National Nutrition Month
National Optimism Month
National Peanut Month
National Professional Social Worker's Month
National Reading Month
National Sauce Month
National Umbrella Month
National Women's History Month
NZ Book Month
Play the Recorder Month
Poison Prevention Awareness Month
Read an E-Book Month
Red Cross Month
Save Your Vision Month
Sing With Your Child Month
Small Press Month
Social Work Month
Spiritual Wellness Month
Supply Management Month
The Great Daffodil Appeal
Trisomy Awareness Month
Trisomy Awareness Month
Vascular Anomalies Awareness Month
Veggie Month
Women’s Month (Philippines)
Workplace Eye Wellness Month
Workplace Eye Wellness Month
Youth Art Month

Holidays Straight to Your Inbox

Every day is a holiday!
Receive fresh holidays directly to your inbox.