Myasthenia Gravis Awareness Month – Jun. 1, 2027

Myasthenia Gravis Awareness Month
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Myasthenia Gravis Awareness Month takes place throughout June each year. This vital month is dedicated to increasing understanding of Myasthenia Gravis (MG), a chronic autoimmune neuromuscular disease. Join the community in spreading awareness, supporting patients, and funding critical research.

Want to sponsor Myasthenia Gravis Awareness Month? Learn how

Expected Myasthenia Gravis Awareness Month Deals

Throughout Myasthenia Gravis Awareness Month, focus shifts from commercial deals to crucial fundraising and advocacy efforts. Organizations like the Myasthenia Gravis Foundation of America (MGFA) often partner with corporate sponsors for donation matching campaigns, encouraging contributions to research and patient support. Look for special events, virtual walks, and awareness drives hosted by local chapters and patient groups. Brands in the healthcare and pharmaceutical sectors, such as Alexion AstraZeneca Rare Disease and UCB, may highlight their commitment to MG research and patient access programs. We will update this page with confirmed live initiatives as June approaches, directing support to official cause sites.

Platform Guide for Myasthenia Gravis Awareness Month

Instagram

Tag @nationaltoday_ and use #MGAwarenessMonth. Share personal stories, educational infographics, and highlight patient journeys.

Facebook

Mention National Today (facebook.com/nationaltoday) and use #MyastheniaGravisAwareness. Engage with community groups and share fundraising event details.

X/Twitter

Mention @NatlToday and use #MGMonth. Share research updates, advocate for policy changes, and amplify patient voices.

Social Media Tips for Myasthenia Gravis Awareness Month

Individuals

Wear purple, the official color for MG awareness, throughout June. Share your personal connection to MG or educate your network about the disease's impact.

Creators

Produce short videos explaining MG symptoms or daily challenges. Interview a patient or advocate to share their experiences and raise empathy.

Brands

Launch a donation-matching campaign for an MG charity. Highlight employees affected by MG or partner with an advocacy group for a co-branded awareness initiative.

Organizations & Brands for Myasthenia Gravis Awareness Month

  1. Myasthenia Gravis Foundation of America (MGFA)

    Founded in 1952, the MGFA is the largest and oldest patient organization dedicated to the MG community. It funds research, provides patient education, and advocates for improved care and treatments.

  2. Alexion AstraZeneca Rare Disease

    A global biopharmaceutical company focused on rare diseases, Alexion (now part of AstraZeneca) develops therapies for conditions like MG. They are a significant player in advancing treatment options for patients worldwide.

  3. UCB

    A global biopharma company, UCB is committed to developing innovative medicines for people living with severe diseases, including autoimmune and neurological disorders like Myasthenia Gravis, and supporting patient communities.

  4. Convalescent Plasma Partners

    Organizations like Convalescent Plasma Partners facilitate plasma donation, a crucial component for treatments like IVIg (intravenous immunoglobulin) which can be used to manage acute exacerbations of MG.

  5. Grifols

    A global healthcare company with a 80-year legacy, Grifols is a leading producer of plasma-derived medicines, including immunoglobulins that are vital for many MG patients. They operate plasma donation centers worldwide.

  6. Myasthenia Gravis Association (MGA)

    The MGA, based in the UK, is a national charity providing support and information to those affected by Myasthenia Gravis. They focus on improving the lives of patients through advice, advocacy, and community building.

  7. Rare Disease Day

    While not a brand, Rare Disease Day (observed annually on the last day of February) is a global campaign that unites the rare disease community, including MG patients, to raise awareness and advocate for better diagnosis and treatment.

Myasthenia Gravis Awareness Month Hero

Dr. Mary Walker

Dr. Mary Walker, a British physician, made a pivotal observation in 1934 when she noted the similarity between myasthenia gravis symptoms and curare poisoning, leading her to successfully treat an MG patient with physostigmine. Her work was instrumental in establishing the cholinergic basis of MG and paved the way for effective treatments.

History of Myasthenia Gravis Awareness Month

Myasthenia Gravis Awareness Month is observed every year in June. It’s observed across the country to allow people from the M.G. community to come together and raise awareness about this condition.

M.G. is a neuromuscular disease that causes skeletal muscle weakness in varying degrees. It is an autoimmune disease that affects the neuro-muscular junction, causing antibodies to develop that block or destroy the nicotinic acetylcholine receptors, which are found at the junction between nerves and muscles. The breakdown of these receptors prevents muscles from receiving signals from the nerves and contracting accordingly, causing overall muscle weakness.

People affected by this disease find that the most commonly affected muscles are in the eyes, face, and throat, which affects the ability to swallow. Other issues that result from M.G. include drooping eyelids, double vision, difficulty speaking, and difficulty walking. Symptoms include a hoarse voice, fatigue, difficulty walking up the stairs or lifting objects, and facial paralysis.

M.G. is treated with medication including immunosuppressants, neostigmine, and pyridostigmine, which are acetylcholinesterase inhibitors. Surgical intervention may be required in some cases, during which surgeons might remove the thymus of the affected person, which is a lymphoid organ of the immune system.

Diagnosis of this disease requires both a physical and neurological exam to evaluate muscle weakness, movement and sensation, muscle tone, and motor function. If diagnosed, there are treatments that help to manage the symptoms by controlling the immune system response.

Myasthenia Gravis Awareness Month timeline

1600s
M.G. is Discussed by English Doctors

Four English doctors, Thomas Willis, Samuel Wilks, Wilhelm Erb, and Samuel Goldflam, discuss and write about the M.G. symptoms.

1895
A Name is Proposed for the Condition

German Physician Friedrich Jolly proposes the term ‘myasthenia gravis pseudo-paralytica’ for the condition.

1934
A Patient is Treated

Scottish Physician Mary Broadfoot Walker uses physostigmine to treat a patient with M.G.

1973
The Cause of M.G. is Observed

Jim Patrick and Jon Lindstrom demonstrate that M.G.-like symptoms are caused in rabbits injected with purified acetylcholine receptors.

How Businesses Can Celebrate Myasthenia Gravis Awareness Month

Local businesses can support Myasthenia Gravis Awareness Month by hosting fundraising events or dedicating a portion of sales to an MG charity like the MGFA. Healthcare providers can offer free informational sessions or screenings for early symptoms. Pharmacies might highlight resources for managing chronic conditions. Consider displaying purple ribbons or educational materials to raise public awareness of this often-misunderstood disease.

Myasthenia Gravis Awareness Month FAQs

When is Myasthenia Gravis Awareness Month?

In 2027, Myasthenia Gravis Awareness Month will again be observed throughout June. The entire month serves as a crucial period for advocacy, education, and fundraising efforts.

How many people are affected by Myasthenia Gravis?

Globally, the prevalence of Myasthenia Gravis varies but is generally estimated to be between 10 to 20 cases per 100,000 individuals. Ongoing research aims to better understand these figures and reach undiagnosed patients.

What are the common symptoms of Myasthenia Gravis?

Symptoms of Myasthenia Gravis can range from mild to severe, and may include difficulty speaking, chewing, or breathing in more advanced cases. The unpredictable nature of the weakness can significantly impact a patient’s quality of life.

Is there a cure for Myasthenia Gravis?

While a definitive cure for Myasthenia Gravis remains elusive, ongoing research is exploring new therapeutic avenues and potential disease-modifying treatments. Early diagnosis and consistent management are key to positive outcomes.

How to Observe Myasthenia Gravis Awareness Month

  1. Share information about M.G.

    Spread information among your friends and family. This month is a great way to encourage people to get diagnosed if they have been feeling unwell.

  2. Share stories from the community

    People in the M.G. community come together this month to share their stories and experiences. Share these stories so they reach a wider audience and perhaps someone who needs to hear them.

  3. Host a talk with doctors

    It is important to talk about M.G. Work with your community leaders to organize a talk about this lesser-known condition.

5 Facts About Myasthenia Gravis That You Probably Didn’t Know

  1. The condition is underdiagnosed

    While M.G. is considered fairly rare, it is likely that the condition simply goes undiagnosed in many cases.

  2. A large percentage of receptors are affected

    People with M.G. find that about 80% of the receptors at their neuro-muscular junction are affected.

  3. The exact cause is unknown

    No one really knows what causes M.G. but there is a possibility that it is caused by bacterial or viral proteins.

  4. Diagnosis is becoming common

    The diagnosis of M.G. is becoming more common in the country, with increasing awareness.

  5. A normal life expectancy

    Most people affected by M.G. find that they can live normal lives with treatment and their life expectancy remains normal.

Why Myasthenia Gravis Awareness Month is Important

  1. We want people to be informed

    The disease is underdiagnosed. This month ensures that potential patients and doctors have the information they need for a diagnosis.

  2. We want to support patients

    Patients and relatives of patients share stories during this month to support each other. We want to help by sharing their stories and offering our support.

  3. We want to find a cure

    There is currently no cure for this condition. Fundraising for researchers can be used to help identify a cure for this condition soon.

Myasthenia Gravis Awareness Month dates

Year Date Day
2027 June 1 Tuesday
2028 June 1 Thursday
2029 June 1 Friday
2030 June 1 Saturday
2031 June 1 Sunday