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National Fragile X Awareness Day – July 22, 2023

National Fragile X Awareness Day is observed on July 22 every year. The objective of the day is to raise awareness about Fragile X syndrome (F.X.S.). F.X.S. is the “most common inherited cause of autism and intellectual disabilities worldwide.” It has no cure at present. This genetic disorder occurs when a single gene on the X chromosome ceases to function, shutting down completely. This gene, in particular, is needed to synthesize a protein responsible for brain development. A lack of this protein, as found in F.X.S., leads to developmental issues.

History of National Fragile X Awareness Day

Fragile X syndrome is a genetic disorder that is the “most common inherited cause of autism and intellectual disabilities worldwide.” It affects all sexes. Those with F.X.S. tend to have delayed development of speech and language. Intellectual disabilities also may surface in such individuals, along with anxiety, A.D.H.D., seizures, and autism.

Activist groups in the 1990s fought hard to gain legislative recognition of Fragile X syndrome. The Children’s Health Act of 2000 was an endeavor to set in place a research act for not just Fragile X but also other conditions like autism, juvenile arthritis, juvenile diabetes, and childhood asthma.

The FRAXA research foundation has been a central figure in the fight to gain F.X.S. recognition. David Busby, especially, gained a great deal of goodwill with members of Congress while he was rallying for legislation. Though there remains no cure for the condition, these Congress People also recognized the need for awareness — so when Brusby asked for an awareness day to be dedicated to those living with F.X.S., they obliged. Thus, July 22, 2000, became the first-ever National Fragile X Awareness Day.

National Fragile X Awareness Day timeline

1943
The Syndrome is Discovered

Julia Bell discovers F.X.S.

1998
Rejection

Congress rejects the Fragile X Research Act.

2000
The Children’s Health Act

The Children’s Health Act of 2000 is passed.

July 22, 2000
The First Observance

The first-ever National Fragile X Awareness Day is observed.

National Fragile X Awareness Day FAQs

What is Fragile X Month?

July is Fragile X Awareness Month.

Can Fragile X be cured?

No, there is no cure.

What is the average lifespan of a person with fragile X syndrome?

The average lifespan of a person with F.X.S. is generally normal.

How to Observe National Fragile X Awareness Day

  1. Read about F.X.S.

    The point of National Fragile X Awareness Day is awareness. Contribute to the cause by reading up on the condition.

  2. Tell your family and friends about it

    Play a part in spreading awareness. Refer your family and friends to resources where they can learn about F.X.S.

  3. Talk about it on social media

    Talk about National Fragile X Awareness Day on your social media accounts. It will help to create a buzz around it.

5 Interesting Facts About F.X.S.

  1. Diagnosis

    F.X.S. is diagnosed through D.N.A. sampling.

  2. Comorbidities

    Comorbidities include depression, anxiety, A.D.H.D., autism, sleep apnea, etc.

  3. Nature

    F.X.S. is a gene disorder.

  4. The intensity of symptoms

    Females tend to display milder symptoms than males.

  5. Link with intellectual disability

    Fragile X syndrome is the leading known genetic cause of intellectual disability.

Why National Fragile X Awareness Day is Important

  1. It draws attention to a lesser-known condition

    Not many people are aware of F.X.S. National Fragile X Awareness Day, thus, plays an important role in raising awareness about its existence.

  2. It helps people to empathize

    Ignorance often causes people to act insensitively. The greater the awareness about F.X.S., the more people know to not be insensitive.

  3. It brings attention to an overlooked community

    People living with F.X.S. may often be ostracized due to their condition. National Fragile X Awareness Day rightfully brings attention to the community of people who live with the disease.

National Fragile X Awareness Day dates

YearDateDay
2023July 22Saturday
2024July 22Monday
2025July 22Tuesday
2026July 22Wednesday
2027July 22Thursday

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