Introduction
A week to provide awareness, advocacy and education in honor of those affected by intestinal malrotation intestinalmalrotation.com
Why We Love International Intestinal Malrotation Week
Intestinal Malrotation is Under Represented
Intestinal Malrotation was first identified prior to 1900, yet there has been little progress in the identification and treatment of this anatomical anomaly.
Reported diagnostic incidence of 1/500
Incidence of intestinal malrotation is estimated to be 1/500 live births, yet outcomes are poor and complications are plenty.
Delayed Diagnosis
There is often delayed diagnosis for those with intestinal malrotation leading to life-threatening complications and death.
International Intestinal Malrotation Week Activities
Share your story
Share your personal intestinal malrotation story experience with others
Educate
Advocate to medical stakeholders and share evidence-based information that informs clinicians about intestinal malrotation.
Honor our angels
Honor the lives lost on the account of intestinal malrotation and share with loved ones and the community at large
International Intestinal Malrotation Week timeline
A week to bring together the community of those affected by intestinal malrotation to promote, awareness, hope and progress toward better diagnostic outcomes resulting in reduced pain, suffering and loss
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Meagan ShortMom