Nonprofit Helps Mother Whose Son Has Duchenne Muscular Dystrophy

Davia Jones' son Kyrie was diagnosed with the rare genetic disorder after years of uncertainty.

Mar. 28, 2026 at 1:05am

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A Harford County mother, Davia Jones, struggled for years to find answers about her son Kyrie's slow physical development before he was finally diagnosed with Duchenne Muscular Dystrophy, a rare and progressive genetic disorder that primarily affects young boys. Feeling overwhelmed, Jones found support from the nonprofit organization CureDuchenne, which is hosting a workshop to provide resources and information to families dealing with the disease.

Why it matters

Duchenne Muscular Dystrophy is an extremely rare and debilitating condition that requires specialized care and support. The nonprofit CureDuchenne plays a vital role in helping families navigate the challenges of this disease and access the resources they need.

The details

Davia Jones first noticed her son Kyrie was moving slower than his siblings when he was young. After years of trying to find answers, Kyrie was finally diagnosed with Duchenne Muscular Dystrophy, a genetic disorder that causes progressive muscle weakness. As a single mother of four, Jones felt overwhelmed until she discovered CureDuchenne, a nonprofit organization that provides education, resources, and support to families affected by the disease. CureDuchenne is now hosting a workshop in Baltimore to help connect more families with the information and assistance they need.

  • Kyrie was diagnosed with Duchenne Muscular Dystrophy after years of uncertainty.
  • CureDuchenne is hosting a workshop on Saturday, March 28, 2026 from 8 a.m. to 4 p.m. at the Baltimore Marriott Inner Harbor.

The players

Davia Jones

A single mother of four from Harford County, Maryland whose son Kyrie was diagnosed with Duchenne Muscular Dystrophy.

Kyrie

Davia Jones' son who was diagnosed with the rare and progressive genetic disorder Duchenne Muscular Dystrophy.

CureDuchenne

A nonprofit organization that provides education, resources, and support to families affected by Duchenne Muscular Dystrophy.

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What they’re saying

“It took seven years for her son, Kyrie, to be diagnosed with Duchenne Muscular Dystrophy, a progressive genetic disorder that causes muscle weakness.”

— Davia Jones, Mother

What’s next

CureDuchenne is hosting a workshop on Saturday, March 28, 2026 from 8 a.m. to 4 p.m. at the Baltimore Marriott Inner Harbor to provide resources and information to families dealing with Duchenne Muscular Dystrophy.

The takeaway

This story highlights the critical role that nonprofit organizations like CureDuchenne play in supporting families affected by rare and debilitating genetic disorders like Duchenne Muscular Dystrophy. By providing education, resources, and a community of support, these groups help families navigate the challenges of caring for a child with a complex medical condition.