Black Americans Cite Mistrust, Family Concerns Around Organ Donation

New survey reveals gaps between support in theory and participation in practice

Published on Feb. 5, 2026

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A national survey of over 1,500 Black Americans by Word In Black's Insights & Research Division found that medical mistrust, family concerns, and experiences with the healthcare system shape decisions about organ donation, contributing to persistent gaps between support in theory and participation in practice.

Why it matters

Organ donation is a critical public health issue, but Black Americans have historically lower rates of registration and participation compared to other racial groups. Understanding the specific barriers and concerns within the Black community is essential to developing more culturally responsive outreach, policies, and care around this life-saving medical practice.

The details

The survey found that while many Black Americans express support for organ donation in principle, a range of complex personal, familial, and systemic factors influence their actual decisions. Key issues include deep-seated medical mistrust stemming from historical abuses, concerns about equitable access and fair treatment within the healthcare system, and family dynamics that can make the donation decision difficult even for those personally inclined to donate.

  • The survey was conducted in January 2026.

The players

Word In Black

A national media collaborative focused on solutions-oriented journalism for the Black community.

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The takeaway

Addressing the complex web of personal, familial, and systemic factors that shape organ donation decisions in the Black community will require a multi-pronged approach - one that centers lived experiences, builds trust, and creates more equitable access to this critical medical practice.