Singer Jessy Nelson Opens Up About Living with SMA: A Story of Hope and Resilience

Nelson's twins' diagnosis sparks important conversations about early intervention and living a fulfilling life with Spinal Muscular Atrophy

Apr. 11, 2026 at 6:10am

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An extreme close-up X-ray photograph showing the delicate, ghostly outline of a human spinal cord, conceptually representing the medical complexities of Spinal Muscular Atrophy.A powerful X-ray image revealing the intricate structure of the human spinal cord, symbolizing the complex medical journey of those living with Spinal Muscular Atrophy.Corbin Today

Singer Jessy Nelson has opened up about her personal journey with Spinal Muscular Atrophy (SMA), a rare genetic condition that causes muscle weakness. Her revelation has sparked an important conversation, especially as she advocates for newborn testing to prevent irreversible damage. BBC journalist Ben Morris also shares his own experience defying the odds and living a thriving life with SMA type two, proving a diagnosis doesn't define one's potential.

Why it matters

Nelson's openness about her twins' diagnosis is a step towards breaking the stigma around SMA. Her story, along with Ben Morris', encourages discussions on how we can better support those living with SMA and ensure early detection and access to the best treatments, potentially preventing severe respiratory issues.

The details

Ben Morris was diagnosed with SMA type two at around six months old, despite initial reassurance from doctors. The neurologist's prognosis was grim, predicting he might not live beyond his second birthday. However, Ben defied the odds and is now a thriving 25-year-old, working as a journalist and living independently. SMA is a rare genetic condition with varying severity, and the NHS recognizes five types, with type two being the most common among adults. NICE estimates SMA affects approximately one in 14,000 births worldwide, with 60% of cases being type one in the UK.

  • Ben Morris was diagnosed with SMA type two around six months old.
  • The neurologist initially predicted Ben might not live beyond his second birthday.

The players

Jessy Nelson

A singer who has opened up about her personal journey with Spinal Muscular Atrophy (SMA) and her twins' diagnosis.

Ben Morris

A BBC journalist who shares his own experience of living with SMA type two and defying the odds to thrive as a 25-year-old.

Emily Morris

Ben's sister, who was born three years later and does not have SMA but may be a carrier.

Ben's father

A project manager who applied his skills to navigate the complex web of support services, ensuring Ben received the best care.

Kim Tserkezie, Sally Kidson, and Shane Burcaw

Individuals with SMA who have had success stories with advanced treatments, serving as examples of the potential for a brighter future with early intervention.

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What they’re saying

“We must not let individuals continue to damage private property in San Francisco.”

— Robert Jenkins, San Francisco resident

“Fifty years is such an accomplishment in San Francisco, especially with the way the city has changed over the years.”

— Gordon Edgar, grocery employee

What’s next

The judge in the case will decide on Tuesday whether or not to allow Walker Reed Quinn out on bail.

The takeaway

This case highlights growing concerns in the community about repeat offenders released on bail, raising questions about bail reform, public safety on SF streets, and if any special laws to govern autonomous vehicles in residential and commercial areas.