Foundation for Sarcoidosis Launches 'See Sarcoidosis' Awareness Campaign

The month-long initiative aims to highlight the complex, evolving nature of the rare disease.

Apr. 1, 2026 at 11:34am

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The Foundation for Sarcoidosis Research (FSR) is leading Sarcoidosis Awareness Month in April 2026 with its 'See Sarcoidosis' campaign, which reflects the kaleidoscope-like complexity of the rare disease. The campaign will focus on different aspects of sarcoidosis each week, from diagnosis challenges to mental health impacts, to help the public better understand the realities of living with the condition.

Why it matters

Sarcoidosis is often described as a 'snowflake disease' because it can affect each patient differently, making it difficult to diagnose, treat, and even recognize. The 'See Sarcoidosis' campaign aims to bring greater visibility to the many unseen ways the disease can present and impact individuals, in order to improve awareness, support research, and drive policy changes to benefit the sarcoidosis community.

The details

The 'See Sarcoidosis' campaign will highlight a distinct focus each week throughout April, ranging from diagnosis challenges and daily symptom burden to mental health impacts and advocacy needs. Week 1 focuses on raising awareness through education and storytelling, Week 2 emphasizes the resilience and power of the sarcoidosis community, Week 3 calls for increased attention to research and earlier diagnosis, and Week 4 looks to the future and advancing progress toward better treatments and a cure.

  • The 'See Sarcoidosis' campaign will run throughout April 2026, which is Sarcoidosis Awareness Month.
  • The campaign will feature a different weekly theme, with each week focusing on a specific aspect of living with sarcoidosis.

The players

Foundation for Sarcoidosis Research (FSR)

The leading international non-profit organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support.

Mary McGowan

The President and CEO of the Foundation for Sarcoidosis Research.

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What they’re saying

“A kaleidoscope of shifting patterns reminds us that sarcoidosis is never one story, but many—each patient a unique expression of complexity, change, and resilience.”

— Mary McGowan, President and CEO, Foundation for Sarcoidosis Research

What’s next

Throughout April, the sarcoidosis community will be encouraged to participate in educational, wellness, and community events, share their personal stories, wear and post purple (the official color of sarcoidosis awareness), and support fundraising initiatives like the 'Take Steps to See Sarcoidosis' virtual challenge. Individuals are also urged to advocate for policy change by contacting their members of Congress and asking them to join the Congressional Sarcoidosis Caucus.

The takeaway

The 'See Sarcoidosis' campaign aims to bring greater visibility to the complex, evolving nature of sarcoidosis, which can make the disease difficult to diagnose and understand. By highlighting the diverse experiences of those affected and driving collective action, the Foundation for Sarcoidosis Research hopes to improve awareness, support research, and ultimately, advance progress toward better treatments and a cure for this rare condition.